Early day motion · EDM 1553 · 13 May 2008
MUSCULAR DYSTROPHY
Tabled by Alun Michael (Labour (Co-op))
45 signatures
The motion
That this House welcomes the publication of a new report by leading neuromuscular physiotherapists and clinicians as part of the Muscular Dystrophy Campaign's Building on the Foundations campaign; recognises that for many adults and children living in Wales with muscular dystrophy and related neuromuscular conditions physiotherapy is essential in maintaining the best quality of life, for the longest time possible; is concerned that many patients in Wales with neuromuscular conditions are being denied timely and ongoing physiotherapy on the NHS; notes that young adults often have their physiotherapy withdrawn when they reach adulthood; further notes the serious concerns raised in the Muscular Dystrophy Campaign's oral evidence to the Welsh Affairs Select Committee regarding cross-border arrangements; urges the Welsh Assembly Government to undertake a review of neuromuscular services; and calls on the Welsh Assembly Government to recognise neuromuscular services as a specialist service best delivered as part of a multidisciplinary team, to ensure improved standards of care for all patients with neuromuscular conditions.
Source: the official Early Day Motions database.