RARE AND COMPLEX CONDITIONS

That this House acknowledges that while the cost of treating people with rare and complex medical conditions represents a tiny fraction of NHS expenditure, the relative specific costs of such treatment can be high; recognises the great strength of the NHS in pooling financial risk for the benefit of such individuals; encourages interested parties to work together in developing an ethical framework to inform decisions on funding; and calls upon the Government to ensure that the National Institute for Health and Clinical Excellence reflects the Secretary of State's directions regarding clinical need and innovation in assessing high cost treatments.