EAST MIDLANDS MUSCLE GROUP

That this House welcomes the launch of the East Midlands Muscle Group; notes that the group is led by local families and people affected by muscular dystrophy and related neuromuscular conditions who will campaign to improve access to essential specialist care and support; is concerned to learn of the serious problems affecting the 4,000 people with muscular dystrophy and related neuromuscular conditions living in the East Midlands; further notes that access to multi-disciplinary specialist care improves overall health outcomes and survival for patients with muscular dystrophy and related neuromuscular conditions; is deeply concerned that some patients are being denied access to multi-disciplinary specialist care; calls on the East Midlands Specialised Commissioning Group, local primary care trusts and the Strategic Health Authority to take forward a review of neuromuscular services to identify areas of best practice and gaps in NHS service provision; and praises the campaign led by the Muscular Dystrophy Campaign, local families, health professionals and experts in these conditions who will work together to fight for good access to clinically effective, first class, specialised neuromuscular services across the East Midlands region.