NATIONAL STRATEGY FOR MOTOR NEURONE DISEASE

That this House endorses the call by the Motor Neurone Disease Association for a national strategy for motor neurone disease (MND) and believes that such a strategy would lead to enhanced cost-effectiveness and good practice; supports the implementation of the National Service Framework for Long-Term Neurological Conditions; is dismayed that no official national clinical guidance or approach exists in relation to MND; notes the extreme cruelty of motor neurone disease, which dramatically curtails lives and traps an often healthy mind in a failing and incapacitated body; and further believes that a national strategy is urgently needed in order to address the inequity of access to best practice in care for people with MND and to ensure as high a quality of life as possible and dignity in death.