NEUROMUSCULAR CARE

That this House calls on the NHS West Midlands Specialised Commissioning Group to accept and approve the clinician-endorsed neuromuscular strategy; notes that the strategy was commissioned and produced by the Group's own Specialised Commissioning Team with the input of patients and the Muscular Dystrophy Campaign; welcomes the recommendation to save up to £6.6 million spent annually on unplanned emergency admissions for people living with rare and very rare muscular dystrophy and related neuromuscular conditions; expresses concern that clinicians estimate that patients who do not receive specialist neuromuscular care are 20 times more likely to have to be admitted to hospital as an emergency than those who receive timely preventative care; and calls on the Government to urge regional NHS decision-makers to take the action necessary to ensure that everyone living with neuromuscular conditions across the West Midlands has access to specialist multidisciplinary care.