Early day motion · EDM 3013 · 25 Apr 2012
CYSTIC FIBROSIS WEEK 2012
Tabled by Sir Bob Russell (Liberal Democrat)
24 signatures
The motion
That this House welcomes Cystic Fibrosis Week which takes place from 29 April to 5 May 2012; notes that Cystic Fibrosis Week provides a valuable opportunity to increase awareness and knowledge of cystic fibrosis and campaign for improvements in care and support for the 9,000 people with the condition in the UK; acknowledges that cystic fibrosis is one of the UK's most common life-threatening inherited diseases; further welcomes the latest figures which show that the median age of survival has increased to 41 years; acknowledges concerns that cystic fibrosis services are struggling because of the increased patient population, cut backs in posts vital to cystic fibrosis care and cuts in beds suitable for accommodating people with cystic fibrosis; and calls on the Government to ensure cystic fibrosis services are adequately resourced with extra bed capacity suitable for people with cystic fibrosis.
Source: the official Early Day Motions database.