Early day motion · EDM 1133 · 9 May 2023

Hereditary angioedema awareness day (No. 2)

Tabled by Deidre Brock (Scottish National Party) 28 signatures

The motion

That this House celebrates Hereditary Angioedema (HAE) day on Tuesday 16 May 2023; recognises that HAE has a significant impact on patient lives and can cause unpredictable potentially life-threatening attacks; commends the important work patient organisations, such as HAE UK, and leading immunology specialists have done to support and advocate for those living with HAE; applauds the ambition for patients to experience zero swelling episodes or attacks; welcomes the commitments of the Rare Disease Framework to improve health outcomes for rare disease populations; and urges policymakers to recognise the need to increase clinical awareness of rare diseases, prioritise quality of life in treatment guidelines, improve shared decision-making processes, and ensure better access to psychological support.

Source: the official Early Day Motions database.