Early day motion · EDM 590 · 13 Jul 2026

Ehlers Danlos Syndrome

Tabled by Dr Danny Chambers (Liberal Democrat) 18 signatures

The motion

That this House commends the tireless campaigning of EDS UK to raise awareness about hypermobile Ehlers Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD); recognises that these multisystem conditions are often undiagnosed for years, leaving patients to suffer a litany of seemingly unconnected symptoms; highlights that this means that those with hEDS/HSD are often left without adequate support or care to manage their symptoms, which can be devastating; underlines that hEDS/HSD ought not be called rare but rather a realistic possibility; celebrates the work of Dr Reinhold in Winchester to develop the RCGP EDS Toolkit which is available worldwide to support medical practitioners to recognise hEDS/HSD earlier; urges the Government to promote this toolkit as a means of raising awareness about EDS; and calls on the Government to meet with EDS UK to discuss next steps.