Written questions

1,057 written questions tabled, most recent first.

15 Sep 2023 · Department for Levelling Up, Housing and Communities

Public Lavatories: Waste Disposal

To ask the Secretary of State for Levelling Up, Housing and Communities, if he will take steps to ensure that the consultation entitled Toilet provision in buildings other than dwellings, published on 13 August 2023, includes the consideration of equal pr

15 Sep 2023 · Department for Levelling Up, Housing and Communities

Incontinence

To ask the Secretary of State for Levelling Up, Housing and Communities, whether his Department plans to make an assessment of the adequacy of Approved Document M for ensuring that men who experience incontinence can access sanitary bins.

1 Sep 2023 · Department of Health and Social Care

Babies: Blood Tests

To ask the Secretary of State for Health and Social Care, whether he has made a comparative assessment of the number of conditions screened under the NHS bloodspot programme with similar programmes in other European countries.

1 Sep 2023 · Department of Health and Social Care

Spinal Muscular Atrophy: Screening

To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of introducing newborn screening for spinal muscular atrophy on the priorities of the UK Rare Disease Framework.

1 Sep 2023 · Department of Health and Social Care

Spinal Muscular Atrophy: Screening

To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential impact of the UK not having a spinal muscular atrophy screening programme on the development of the UK life science sector.

1 Sep 2023 · Department of Health and Social Care

Spinal Muscular Atrophy: Screening

To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of introducing a permanent newborn screening programme for spinal muscular atrophy on the Government's Life Sciences Vision ambition to make the

1 Sep 2023 · Department of Health and Social Care

Spinal Muscular Atrophy: Screening

To ask the Secretary of State for Health and Social Care, whether he plans to expedite the introduction of newborn spinal muscular atrophy screenings.

1 Sep 2023 · Department of Health and Social Care

Spinal Muscular Atrophy: Babies

To ask the Secretary of State for Health and Social Care, whether he has made a comparative assessment of health inequalities for babies that have had access to newborn screening for spinal muscular atrophy with those that haven't.

1 Sep 2023 · Department of Health and Social Care

Spinal Muscular Atrophy: Babies

To ask the Secretary of State for Health and Social Care, whether he has made an estimate of the number of babies born with spinal muscular atrophy that may experience irreversible disability between August 2023 and the conclusion of the review into newbo

1 Sep 2023 · Department of Health and Social Care

Spinal Muscular Atrophy: Screening

To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential impact of the UK National Screening Committee commissioning a cost-effectiveness modeling study for spinal muscular atrophy on the timeline for implemen

1 Sep 2023 · Department of Health and Social Care

Spinal Muscular Atrophy: Screening

To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of the timelines for the UK National Screening Committee’s in-service evaluation for severe combined immunodeficiency screening in the NHS; and whether h

1 Sep 2023 · Department of Health and Social Care

Spinal Muscular Atrophy: Screening

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to (a) ensure and (b) monitor the (i) introduction, (ii) delivery and (iii) completion of the in-service evaluation for spinal muscular atrophy screening in the

1 Sep 2023 · Department of Health and Social Care

Spinal Muscular Atrophy: Screening

To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of opportunities available to the patient community to input into the (a) design and (b) delivery of the UK National Screening Committee’s upcoming in-se

1 Sep 2023 · Department of Health and Social Care

Spinal Muscular Atrophy: Screening

To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential impact of an in-service evaluation for spinal muscular atophy in the NHS on (a) patients and (b) patient families outside of the pilot area.

1 Sep 2023 · Department of Health and Social Care

Spinal Muscular Atrophy: Screening

To ask the Secretary of State for Health and Social Care, what information the UK National Screening Committee has provided on the (a) format, (b) scale and (c) duration of the upcoming in-service evaluation for spinal muscular atrophy screening in the NH

1 Sep 2023 · Department of Health and Social Care

Spinal Muscular Atrophy: Screening

To ask the Secretary of State for Health and Social Care, whether he plans to meet with the UK National Screening Committee to discuss the timescale for implementing an in-service evaluation for spinal muscular atrophy screening in the NHS.

20 Jul 2023 · Department of Health and Social Care

Ultrasonics

To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 5 July 2023 to Question 191810 on Ultrasonics, if his Department will make an assessment of the potential impact of increasing access to MR-Guided Focused Ultrasound treat

18 Jul 2023 · Department of Health and Social Care

Neurology: Health Services

To ask the Secretary of State for Health and Social Care, what steps his Department plans to take to support the needs of people with (a) spinal muscular atrophy and (b) other rare neurological conditions as part of its implementation of the Rare Diseases

18 Jul 2023 · Department of Health and Social Care

Rare Diseases: Diagnosis

To ask the Secretary of State for Health and Social Care, with reference to his Department's policy paper entitled England Rare Diseases Action Plan 2023: main report, updated on 10 July 2023, what steps his Department is taking to end the diagnostic odys

18 Jul 2023 · Department of Health and Social Care

Neurological Diseases: Diagnosis and Medical Treatments

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support early (a) diagnosis and (b) treatment for people with (i) spinal muscular atrophy and (ii) other rare, genetic and neuromuscular conditions.

18 Jul 2023 · Department of Health and Social Care

UK National Screening Committee

To ask the Secretary of State for Health and Social Care, if he will take steps to expedite the process for publishing minutes from UK National Screening Committee meetings.

18 Jul 2023 · Department of Health and Social Care

UK National Screening Committee: Rare Diseases

To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of the resources available to the UK National Screening Committee to (a) adequately engage with the rare disease stakeholder community and (b) ensure it

18 Jul 2023 · Department of Health and Social Care

UK National Screening Committee: Finance

To ask the Secretary of State for Health and Social Care, what recent assessment he has made of the adequacy of the (a) capacity of and (b) funding available to the UK National Screening Committee.

18 Jul 2023 · Department of Health and Social Care

Rare Diseases: Medical Treatments

To ask the Secretary of State for Health and Social Care, what steps he plans to take to ensure an equitable uptake of new treatments for (a) spinal muscular atrophy and (b) other rare diseases once recommended by NICE.

18 Jul 2023 · Department of Health and Social Care

Rare Diseases: Diagnosis and Medical Treatments

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to reduce (a) diagnosis and (b) treatment waiting times for people with rare diseases which present in childhood.

18 Jul 2023 · Department of Health and Social Care

Spinal Muscular Atrophy: Diagnosis and Medical Treatments

To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the impact of average (a) diagnosis and (b) treatment waiting times on people affected by spinal muscular atrophy.

18 Jul 2023 · Department of Health and Social Care

Spinal Muscular Atrophy: Babies

To ask the Secretary of State for Health and Social Care, whether the UK National Screening Committee has had recent discussions with (a) patient organisations, (b) patients and (c) families affected by spinal muscular atrophy (SMA) as part of its review

18 Jul 2023 · Department of Health and Social Care

Rare Diseases: Screening

To ask the Secretary of State for Health and Social Care, what steps the UK National Screening Committee is taking to review its methods, processes and criteria to ensure they are appropriate for assessing rare conditions.

18 Jul 2023 · Department of Health and Social Care

Babies: Screening

To ask the Secretary of State for Health and Social Care, if he will ask the UK National Screening Committee to publish its methods, processes and criteria for reviewing conditions to be included in the NHS newborn screening programme.

18 Jul 2023 · Department of Health and Social Care

Babies: Screening

To ask the Secretary of State for Health and Social Care, what steps he is taking to (a) improve the horizon scanning capabilities of the UK National Screening Committee and (b) increase alignment between National Institute for Health and Care Excellence

Source: official written-questions record.