Make treatment for Tarlov Cyst Disease available on the NHS.

Closed 314 signatures

What the petition asks

Also known as perineurial cyst or sacral nerve root cyst, the Tarlov Cyst is a dilation of the nerve root sheath or outer covering of the nerve. Cerebral spinal fluid gets trapped inside the sheath and forms a cyst. The fluid in the cyst can put pressure on the nerve and cause debilitating symptoms.

The cyst is the nerve and therefore cannot be cut out. When the neurological symptoms become severe and the sacrum is eroding and remodeling, surgery may be the treatment of choice.
The surgery is not available under the NHS, either routinely or through specialised commissioning because of a lack of evidence for its effectiveness.
UK citizens have to pay up to 30.000 £ for a private surgery abroad(Cyprus or USA).
http://tarlovcyst.co.uk/
http://www.tarlovcystfoundation.org/home0.aspx

Timeline

29 Sep 2015	Petition opened for signatures
29 Mar 2016	Closed to new signatures

Key facts

Signatures 314

Status Closed

Opened 29 Sep 2015

Closed 29 Mar 2016

Follow this petition