Give people with rear Poland syndrome a registered awareness.

Rejected 17 signatures

What the petition asks

Poland syndrome is a rare birth defect characterized by underdevelopment or absence of the chest muscle (pectoralis) on one side of the body, and usually also webbing of the fingers, small hands and arms can accrue to. Ps can also come with missing/ shortened organs shoulder and rib abnormalities.

My son was born with poland syndrome.
He has no major or minor pectoral muscle, high right shoulder small right hand and arm small right leg and lumber lordosis of the spine gastrointestinal and problems with his bowel my son now 15 months Finley-blu when we was first told there was no information about ps and the is very little none we had to travel to different places to get the help he needed but if there was awareness then we would of none more.

Why it was rejected

It was not clear what the petition asked the UK Government or Parliament to do.

We can't accept your petition in its current form as it goes not call for a clear action from the UK Government and Parliament. You could start a new petition calling for the Government to raise awareness of Poland syndrome and provide more information to those affected.

Timeline

23 Feb 2016	Petition opened for signatures
26 Feb 2016	Rejected by the Petitions Committee

Key facts

Signatures 17

Status Rejected

Rejected 26 Feb 2016

Follow this petition