Petition · past parliament
Grant children immediate access to life saving drug.
Closed
485 signatures
What the petition asks
NHS England have today announced that all early access programmes regarding Nusinersen will be put on hold. They want to open just 5 centres accross the country, this takes time. Time is something many SMA children don't have.
Please join me in asking NHS England to reverse this decision.
Please join me in asking NHS England to reverse this decision.
Nusinersen is the only known treatment of SMA, it is not a miracle cure, however it gives children time and a better quality of life.
Spinal Muscular Atrophy, what's that you might ask. A month ago I wouldn't have known my self.
It's an evil disease that effectively makes your child waste away. Their muscles waste until eventually they suffer respiratory failure, the whole time their brain unaffected.
Spinal Muscular Atrophy, what's that you might ask. A month ago I wouldn't have known my self.
It's an evil disease that effectively makes your child waste away. Their muscles waste until eventually they suffer respiratory failure, the whole time their brain unaffected.
Timeline
| 24 Feb 2017 | Petition opened for signatures |
| 2 May 2017 | Closed to new signatures |
Key facts
Signatures
485
Status
Closed
Opened
24 Feb 2017
Closed
2 May 2017
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Source: the official petition page. Last checked 15 Jul 2026.