Petition · past parliament

Raise awareness about a newly found Genetic Condition EBF3-HADDS

Closed 54 signatures

What the petition asks

I am starting this online petition for the UK government to Raise more awareness about this newly found Genetic Condition syndrome called EBF3-HADDS.
This rare mutations in the gene has just recently been found so very little is know. About it. Help us raise more awareness about it please.
https://ebf3blog.wordpress.com

Timeline

14 Nov 2018 Petition opened for signatures
14 May 2019 Closed to new signatures

Key facts

Signatures 54
Status Closed
Opened 14 Nov 2018
Closed 14 May 2019

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Source: the official petition page. Last checked 15 Jul 2026.