Petition · past parliament
Fund treatment of Spinal Muscular Atrophy with Spinraza
Closed
2,713 signatures
What the petition asks
Many countries across the world, including some significantly smaller economies such as Poland and Slovakia are providing children and adults access to Spinraza for the treatment of SMA. It is vital that this treatment is made accessible to sufferers in England.
There is increasing evidence that not only does the treatment help young children, particularly type 1 sufferers, but that it also halts progression in adults. SMA is effectively a slow death sentence for those afflicted and sufferers should be given the right to be able to slow the progression in order to live as full a life as possible.
Timeline
| 1 Feb 2019 | Petition opened for signatures |
| 1 Aug 2019 | Closed to new signatures |
Key facts
Signatures
2,713
Status
Closed
Opened
1 Feb 2019
Closed
1 Aug 2019
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Source: the official petition page. Last checked 15 Jul 2026.