Petition · past parliament
Make Kuvan available on the NHS
Closed
325 signatures
What the petition asks
Phenylketonuria (PKU) is an inborn error of metabolism that results in decreased metabolism of the amino acid phenylalanine. Untreated, PKU can lead to intellectual disability, seizures, behavioral problems, and mental disorders. It may also result in a musty smell and lighter skin.
This drug can literally change the lives of people with phenylketonuria (PKU). In addition, please continue research to find solutions for this debilitating condition.
https://www.nhs.uk/conditions/phenylketonuria
https://www.nhs.uk/conditions/phenylketonuria
Timeline
| 11 Jul 2019 | Petition opened for signatures |
| 6 Nov 2019 | Closed to new signatures |
Key facts
Signatures
325
Status
Closed
Opened
11 Jul 2019
Closed
6 Nov 2019
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Source: the official petition page. Last checked 15 Jul 2026.