Introduce new-born screening for Adrenoleukodystrophy in hospitals across the UK

Closed 663 signatures

What the petition asks

This petition is to introduce screening for all new-borns across the UK for the genetic condition ALD, if the disease is found early on it is less likely to be terminal and can be treated.

Adrenoleukodystrophy (ALD) affects 1 in 17,000 individuals (males and females) worldwide.

References:
https://www.alextlc.org/what-is-a-leukodystrophy/the-different-leukodystrophies/
https://www.derbyshiretimes.co.uk/news/chesterfield-fc-give-brave-young-boy-10-with-rare-genetic-brain-disease-chance-to-lead-out-spireites-on-saturday-1-9674806
https://www.newbornscreening.info/Parents/otherdisorders/X-ALD.html

Timeline

10 Jul 2019	Petition opened for signatures
6 Nov 2019	Closed to new signatures

Key facts

Signatures 663

Status Closed

Opened 10 Jul 2019

Closed 6 Nov 2019

Follow this petition