Petition · past parliament · Department of Health and Social Care
Fund Spinraza for all SMA patients on the NHS
Closed
5,004 signatures
What the petition asks
Spinal Muscular Atrophy (SMA) is a serious degenerative condition that can be treated with Spinraza. Yet NICE’s Managed Access Agreement for Spinraza means many SMA patients can't access it on the NHS. The Government, NHS England & NICE should make Spinraza available for all SMA patients.
Jake Ogborne is one of hundreds of SMA patients who could benefit from accessing Spinraza, but who does not meet eligibility criteria for getting it on the NHS. Hear his story at https://tinyurl.com/y2sdlx62 and in this article at https://tinyurl.com/y489zdvl.
Campaign groups such as TreatSMA have long advocated for Spinraza to be accessible for all SMA patients: https://tinyurl.com/y2fxssdz.
Biogen, Spinraza's manufacturer, has collected data to demonstrate its effectiveness for excluded patients: https://tinyurl.com/y4hamxpq.
Campaign groups such as TreatSMA have long advocated for Spinraza to be accessible for all SMA patients: https://tinyurl.com/y2fxssdz.
Biogen, Spinraza's manufacturer, has collected data to demonstrate its effectiveness for excluded patients: https://tinyurl.com/y4hamxpq.
Timeline
| 21 Oct 2020 | Petition opened for signatures |
| 21 Apr 2021 | Closed to new signatures |
Key facts
Signatures
5,004
Status
Closed
Department
Department of Health and Social Care
Opened
21 Oct 2020
Closed
21 Apr 2021
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Source: the official petition page. Last checked 15 Jul 2026.