Make DLA or PIP aware of rare Perthes disease to educate and have awareness

At the age of 5 I found I have Perthes disease which is a rare childhood condition that affects the hip. It occurs when the blood supply to the rounded head of the femur (thighbone) is temporarily disrupted. Without an adequate blood supply, the bone cells die, a process called avascular necrosis.

The Personal Independence Payment is paid to people who have a health condition or disability which causes difficulties with daily living or getting around. PIP is paid based on the difficulties causes by a health condition or disability, but there are not particular conditions which result in PIP being paid. You can read more about eligibility for PIP here: https://www.gov.uk/pip/eligibility

If Perthes' disease causes difficulties with daily living or getting around a sufferer could claim for PIP in the same way as someone with another health condition or disability.