Speed up the License medication process through NICE to help HD sufferers

Rejected 21 signatures

What the petition asks

To try and speed up the process of Licensing medication that are near the end of the trial stages, that have shown success, through NICE to help sufferers of this neuro-degenerative disease.

This is a devastating genetic disease that decimates families all around the world and the UK. The child of any Huntington's Disease sufferer is at a 50% risk of inheriting this disease. This affects adults and children in the cruelest way, its a brain eating disease that costs the NHS and social care £22,000 annually for any 1 person suffering. Licensing this medication would drive these costs down tremendously.

Why it was rejected

It was not clear what the petition asked the UK Government or Parliament to do.

Petitions need to call on the Government or Parliament to take a specific action. We're not sure exactly what you'd like the Government or Parliament to do.

You could start a new petition explaining clearly what you'd like the Government or Parliament to do.

You might like to know that NICE are currently conducting a review of the methods and processes they use to assess new medicines and other health technologies, with the aim of speeding up patient access to these interventions, and simplifying the processes by which they evaluate them. You can find out more at:
https://www.nice.org.uk/about/what-we-do/our-programmes/nice-guidance/nice-technology-appraisal-guidance/changes-to-health-technology-evaluation

Timeline

4 Mar 2021	Petition opened for signatures
16 Mar 2021	Rejected by the Petitions Committee

Key facts

Signatures 21

Status Rejected

Rejected 16 Mar 2021

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