Petition · past parliament · Department of Health and Social Care
Fund Kuvan (sapropterin) on the NHS for people with PKU
Closed
320 signatures
What the petition asks
The drug Kuvan allows people with the rare condition PKU to manage their condition. The treatment has been licensed for 11 years but has never been commissioned by the NHS.
The government should make funding available for this treatment for all PKU patients that could benefit.
The government should make funding available for this treatment for all PKU patients that could benefit.
PKU is a rare condition, diagnosed at birth. People with PKU cannot process protein through their body properly and without careful management an amino acid (phenylalanine) causes brain damage. The only treatment funded by the NHS is a restricted diet containing virtually no natural protein. The PKU diet is stressful and difficult to cope with. Outcomes are variable.
Kuvan (sapropterin) is a life changing treatment available in almost every country in Europe. It needs to be available here.
Kuvan (sapropterin) is a life changing treatment available in almost every country in Europe. It needs to be available here.
Timeline
| 22 Mar 2021 | Petition opened for signatures |
| 22 Sep 2021 | Closed to new signatures |
Key facts
Signatures
320
Status
Closed
Department
Department of Health and Social Care
Opened
22 Mar 2021
Closed
22 Sep 2021
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Source: the official petition page. Last checked 15 Jul 2026.