Extend paediatric health care for life limiting muscle wasting conditions.

Rejected 21 signatures

What the petition asks

Extend paediatric care within the NHS health services for young adults with life limiting muscle wasting conditions from age 18 to age 21. Duchenne muscular dystrophy is a life limiting muscle wasting condition for which there is no cure. By staying under paediatrics they would get better care.

Extending paediatric care until the age of 21 will ensure that the right specialist care is offered. Currently once transitioned to adult services they are removed form specialist support networks & teams that would normally be provided for end of life care if they were under 18. This is causing huge stress not only on the person with the condition but for the families, as in nearly all cases they are left to care for their love ones themselves whilst in hospital.

Why it was rejected

It asked for something that is not the responsibility of the UK Government or Parliament.

Petitions must call for a specific action that the UK Government or Parliament are directly responsible for.

Decisions about treatment and care for patients are a matter for the NHS and individual clinicians, not the Government or Parliament. As a result it is not possible for the Government or Parliament to take the action you have requested.

We could accept a petition calling on the Government to review healthcare for people with muscle wasting conditions, or to provide additional funding to improve care for people with these conditions, if that's something you'd like to see.

Timeline

1 Dec 2021	Petition opened for signatures
7 Dec 2021	Rejected by the Petitions Committee

Key facts

Signatures 21

Status Rejected

Rejected 7 Dec 2021

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