Petition · past parliament · Department of Health and Social Care
Fund support and research for children suffering with UBE2A Deficiency Syndrome
Closed
146 signatures
What the petition asks
Provide more financial support for children and parents of children living with this condition. Also research into this rare genetic condition, which affects my son and our family.
This is a rare and very misunderstood condition and there is a lack of support for children living with this disabling condition and their parents. This is leading to poor mental and physical health of parent caregivers as professionals don’t understand the condition properly or how it impacts individuals. It is not the same as any other condition and has it’s own unique problems which are significant to families living with this.
Timeline
| 3 Feb 2022 | Petition opened for signatures |
| 3 Aug 2022 | Closed to new signatures |
Key facts
Signatures
146
Status
Closed
Department
Department of Health and Social Care
Opened
3 Feb 2022
Closed
3 Aug 2022
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Source: the official petition page. Last checked 15 Jul 2026.