Petition · past parliament · Department of Health and Social Care

Increase funding for research into and treatment of STXBP1 encephalopathy

Closed 111 signatures

What the petition asks

STXBP1 encephalopathy is a rare genetic condition characterized by abnormal brain function (encephalopathy) and intellectual disability.
We want the Government to increase funding for research into and treatment of STXBP1 encephalopathy, to help sufferers and their families.

We believe the NHS is far behind other countries in their knowledge of and treatment available for this terrible condition. Additional funding could held address this gap, and identify new treatments.

Timeline

11 Jul 2023 Petition opened for signatures
11 Jan 2024 Closed to new signatures

Key facts

Signatures 111
Status Closed
Department Department of Health and Social Care
Opened 11 Jul 2023
Closed 11 Jan 2024

Follow this petition

Sign in to get an email when the government responds, a debate is scheduled or held, or the petition closes.

Source: the official petition page. Last checked 15 Jul 2026.