Petition · Department of Health and Social Care
Fund research into Desmoid Fibromatosis in children
Closed
95 signatures
What the petition asks
I want the Government to fund research into Desmoid Fibromatosis in babies and children, including more research into the condition itself and treatment options.
Due to a lack of research, many children die and are left with no options other than being made comfortable at a hospice. As the condition can be genetic, other children within families many carry the same gene and have the same condition. We believe there isn’t enough research for this condition, and it’s not good enough. There must be change.
Timeline
| 4 Dec 2025 | Petition opened for signatures |
| 4 Jun 2026 | Closed to new signatures |
Key facts
Signatures
95
Status
Closed
Department
Department of Health and Social Care
Opened
4 Dec 2025
Closed
4 Jun 2026
Follow this petition
Sign in to get an email when the government responds, a debate is scheduled or held, or the petition closes.
Source: the official petition page. Last checked 14 Aug 2026.