Petition · Department of Health and Social Care
Fund NHS access to Tofersen for all people with SOD-1 Motor Neuron Disease
Closed
57 signatures
What the petition asks
We call on the Government to fund universal, NHS access to the life-extending medication Tofersen for all people who have been diagnosed with SOD-1 Motor Neuron Disease.
We are asking for the Government to make Tofersen available to all who would benefit from treatment. The medication has been proven to extend lifespan, and in some cases stop progression of symptoms. We believe the current situation is unethical.
Timeline
| 17 Dec 2025 | Petition opened for signatures |
| 17 Jun 2026 | Closed to new signatures |
Key facts
Signatures
57
Status
Closed
Department
Department of Health and Social Care
Opened
17 Dec 2025
Closed
17 Jun 2026
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Source: the official petition page. Last checked 18 Aug 2026.