Fund more NF1 specialists and regular monitoring and support for NF1 patients

I believe that the processes involved in my husband's monitoring of NF1 were lacking and accessibility to sufficient services would have benefited both him and further patients with the condition. More frequent monitoring would mean we could better track an ongoing condition and react quicker to any changes in anyone affected, meaning better survival rates especially in the cases of aggressive occurrences such as MPNST. More readily available specialists would further this possibility.