Petition · Department of Health and Social Care
Create Multidisciplinary NHS services for hEDS and associated conditions.
Open for signatures
73 signatures
What the petition asks
We want the Government to work with NHS England to establish multidisciplinary specialist services and national care pathways for people with Hypermobile Ehlers-Danlos Syndrome (hEDS) and associated conditions, ensuring coordinated care and reducing delays across multiple specialties.
Although hEDS is mild for some, others develop multiple related conditions requiring care from Rheumatology, Cardiology, Neurology, Gastroenterology, Immunology, MSK, Pain Clinics, and Physiotherapy. Patients face multiple waiting lists with little coordination, causing delays, repeated investigations, higher NHS costs, and reduced quality of life. National multidisciplinary services and care pathways are needed for joined-up care.
Timeline
| 15 Apr 2026 | Petition opened for signatures |
Key facts
Signatures
73
Status
Open for signatures
Department
Department of Health and Social Care
Opened
15 Apr 2026
Follow this petition
Sign in to get an email when the government responds, a debate is scheduled or held, or the petition closes.
Source: the official petition page. Last checked 26 Jul 2026.