Petition · Department of Health and Social Care
Dedicated funding for Epidermolysis Bullosa and rare skin conditions research
Open for signatures
226 signatures
What the petition asks
Increase dedicated, ring-fenced Government funding for research into rare skin conditions, including all forms of Epidermolysis Bullosa (EB), to accelerate the development of effective treatments and support UK clinical trials.
We call on the Government to provide dedicated, ring-fenced funding for research into EB and other rare skin conditions. Children with conditions such as EB experience severe, painful blistering from birth. Promising gene and cell therapies offer real hope, yet research remains significantly underfunded. We urge the Government to ring-fence funding, support clinical trials, and prioritise these conditions within the UK Rare Diseases Framework.
Timeline
| 27 Jul 2026 | Petition opened for signatures |
Key facts
Signatures
226
Status
Open for signatures
Department
Department of Health and Social Care
Opened
27 Jul 2026
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Source: the official petition page. Last checked 28 Jul 2026.