Petition · Department of Health and Social Care
Pass law to require authorities to meet needs of people with Edwards' syndrome
Open for signatures
21 signatures
What the petition asks
Give Edwards / Trisomy 18 — including mosaic forms — same legal recognition & guaranteed NHS care pathways as Down’s Syndrome Act 2022. End unfair, unsafe gaps: no automatic discharge; ensure named neuro disability leads & joined up lifelong care based on need, not diagnosis name.
Edwards / Trisomy 18 — including mosaic — is lifelong, complex & multi system, but no legal duty like Down’s Syndrome Act 2022. Often wrongly called “short term”, leading to unsafe early discharge from therapies & paediatrics, no named neurodisability lead & preventable harm. Support should follow need, not diagnosis prevalence. Equal law = equal safe, joined up care.
Timeline
| 5 Aug 2026 | Petition opened for signatures |
Key facts
Signatures
21
Status
Open for signatures
Department
Department of Health and Social Care
Opened
5 Aug 2026
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Source: the official petition page. Last checked 6 Aug 2026.