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Motion · S6M-06466 · 26 Oct 2022

Kelpies Shine Green to Raise Awareness of Rare Genetic Disorder Phelan-McDermid Syndrome

Lodged by Stephen Kerr (Scottish Conservative and Unionist Party) Standard Motion 8 supporters

The motion

That the Parliament recognises that the Kelpies shone brightly green on 22 October 2022 to raise awareness of the rare genetic condition, Phelan-McDermid Syndrome; acknowledges that families of children with Phelan-McDermid Syndrome gathered at the Kelpies to bring attention to the wider Falkirk and Scottish community; understands that there are only 3,000 people worldwide who are known to be affected by the syndrome, which is caused by a deletion or variation in chromosome 22, and further understands that children with Phelan-McDermid Syndrome are rarely able to live independently in adulthood, but can live fulfilling lives when they receive appropriate medical and educational support.

Supporters (8)

Source: the Scottish Parliament motions and amendments record.