Sign in
☰
People MPsHouse of LordsGovernmentOppositionPartiesCommittees Votes Commons votesLords votesVotes by issueTopicsStats & rankingsParliament in numbers Legislation BillsEarly day motionsPetitions Elections Election resultsConstituenciesWho is my MP? Scotland OverviewMSPsScottish GovernmentVotesBillsMotionsCommitteesConstituencies & regionsElections Search Sign in

Motion · S6M-19257 · 7 Oct 2025

Celebrating 30 Years of SUDEP Action

Lodged by Monica Lennon Standard Motion 26 supporters

The motion

That the Parliament marks the 30th anniversary of SUDEP Action, a charity that has worked alongside bereaved families to raise awareness of Sudden Unexpected Death in Epilepsy (SUDEP) and improve epilepsy safety across Scotland and globally; recognises that SUDEP Action Day takes place on 15 October 2025 and is a global awareness day founded by the charity and supported by organisations worldwide; encourages MSPs to wear the SUDEP Action pin in solidarity with families affected by epilepsy-related deaths, including the family of Jessica Johnston, a young woman from Hamilton, who tragically died aged 20 in hospital while awaiting treatment for seizures; pays tribute to the courage and advocacy of Jessica’s mother, Lindsey Greer, and her family, who continue to campaign for better epilepsy care and accountability; notes that epilepsy-related deaths in Scotland remain a serious public health issue, with 76% of young adult deaths between 2009 and 2016 deemed potentially avoidable; commends SUDEP Action for developing practical and evidence-based digital tools such as the SUDEP and seizure safety checklist, the EpsMon app and the Charlie card to support clinicians and empower people living with epilepsy, and calls on the Scottish Government and the Parliament to strengthen efforts to improve epilepsy safety, ensure clear communication of risk and provide support for bereaved families.

Supporters (26)

Source: the Scottish Parliament motions and amendments record.