EDM: Motor neurone disease

Motor neurone disease

Tabled by Sarah Gibson (Liberal Democrat) 51 signatures

The motion

That this House recognises the significant challenges faced by people living with motor neurone disease and other long-term health conditions; notes the importance of timely diagnosis, personalised care, and access to emerging treatments; encourages the provision of a named GP for individuals with long-term conditions to help improve continuity and quality of care; supports efforts to expand the capacity of the Medicines and Healthcare products Regulatory Agency to help accelerate access to innovative therapies; acknowledges the need to strengthen social care for disabled people, including by tackling vacancies and introducing a new, higher, carers minimum wage and greater support for unpaid carers through measures such as paid carers’ leave and respite breaks; believes that flexible working should be available to all, and that disabled people should be supported to work from home where appropriate; and calls for improved accessibility standards in public spaces, reforms to the blue badge scheme, and consideration of incorporating the UN Convention on the Rights of Persons with Disabilities into UK law.

Signatories (51)