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Motion · S5M-17362 · 21 May 2019

Teddington Trust Receives Prime Minister's Points of Light Award

Lodged by Alexander Burnett (Scottish Conservative and Unionist Party) Standard Motion 20 supporters

The motion

That the Parliament congratulates Nicola Miller and Rebecca Stewart, founders of the Teddington Trust, on receiving the Points of Light Award from the Prime Minister; recognises that the charity was set up to provide free educational resources on the complex skin condition, Xeroderma Pigmentosum (XP), which affects Nicola and Rebecca's family personally and less than 100 others in the UK; further recognises that the trust's "Ted" bear, dressed in UV protective clothing and with a UV-reactive paw, has helped 650 children in 11 countries understand their condition through play; commends Nicola and Rebecca's efforts and willingness to share their experience to raise awareness of, and educate people about, this very rare genetic condition, and wishes them continued success in their charity work.

Supporters (20)

Source: the Scottish Parliament motions and amendments record.