Motion · S3M-02486 · 3 Sep 2008
Muscle Disease Awareness Week
The motion
That the Parliament recognises Muscle Disease Awareness week, taking place from 20 to 27 September 2008, during which the Muscular Dystrophy Campaign will publish a new report, Building on the Foundations: Scotland; is concerned that the report reveals that families with rare and debilitating conditions are being denied treatments that could prolong and improve their lives, particularly home ventilation and physiotherapy, and are faced with major delays in the provision of essential equipment and barriers to independent living; notes that care from a multidisciplinary team, with a lead professional or key worker to coordinate care, improves patient outcomes; welcomes the work of the Scottish Muscle Network to improve patient care in terms of quality, access and appropriateness, and hopes to achieve improved standards of care for all patients with muscular dystrophy and related neuromuscular conditions.
Supporters (40)
- Brian Adam 4 Sep 2008
- Bashir Ahmad 4 Sep 2008
- Jackie Baillie Scottish Labour 4 Sep 2008
- Sarah Boyack 4 Sep 2008
- Jackson Carlaw 4 Sep 2008
- Malcolm Chisholm 4 Sep 2008
- Margaret Curran 4 Sep 2008
- Kenneth Gibson No Party Affiliation 4 Sep 2008
- Karen Gillon 4 Sep 2008
- Marlyn Glen 4 Sep 2008
- Trish Godman 4 Sep 2008
- Iain Gray 4 Sep 2008
- Patrick Harvie Scottish Green Party 4 Sep 2008
- Hugh Henry 4 Sep 2008
- Jamie Hepburn Scottish National Party 4 Sep 2008
- James Kelly 4 Sep 2008
- Paul Martin 4 Sep 2008
- Liam McArthur Scottish Liberal Democrats 4 Sep 2008
- Nanette Milne 4 Sep 2008
- Elaine Murray 4 Sep 2008
- Alex Neil 4 Sep 2008
- Hugh O'Donnell 4 Sep 2008
- Elaine Smith 4 Sep 2008
- David Stewart 4 Sep 2008
- Sandra White 4 Sep 2008
- Karen Whitefield 4 Sep 2008
- David Whitton 4 Sep 2008
- Angela Constance Scottish National Party 5 Sep 2008
- Helen Eadie 5 Sep 2008
- Joe FitzPatrick 5 Sep 2008
- George Foulkes 5 Sep 2008
- Ken Macintosh 5 Sep 2008
- Dr Richard Simpson 5 Sep 2008
- Marilyn Livingstone 8 Sep 2008
- Cathy Peattie 8 Sep 2008
- Jack McConnell 9 Sep 2008
- Gil Paterson 11 Sep 2008
- Rhoda Grant 17 Sep 2008
- Mary Scanlon 1 Oct 2008
- Margaret Mitchell 2 Oct 2008
Source: the Scottish Parliament motions and amendments record.