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Motion · S6M-17853 · 6 Jun 2025

Specialist Huntington’s Disease Services in Glasgow City

Lodged by Sandesh Gulhane Standard Motion 59 supporters

The motion

That the Parliament notes with concern that the Independent National Whistleblowing Officer has upheld four complaints against Glasgow City Health and Social Care Partnership relating to past changes to specialist GP services for people experiencing homelessness in Glasgow, namely, failure to follow a meaningful process of engagement and consultation with staff, failure to undertake meaningful stakeholder consultation, failure to perform a full and timely assessment of risk and equalities impact and failure to take action to address the long-term risks; believes that there are similarities between this case and the current proposal to end specialist Huntington’s Disease services throughout Glasgow City by ending funding to Scottish Huntington’s Association, and calls on Glasgow City Integration Joint Board (IJB) to learn the lessons of past mistakes and postpone this current proposal, in light of reports of cross party concerns, to allow for a full and meaningful consultation with Huntington’s Disease specialist staff, Huntington’s Disease clinical leads, service users and wider stakeholders to ensure that voting members of the IJB are given a comprehensive and co-produced briefing on what it considers are the long-term risks and implications of ending specialist services for what it believes is such a complex, widely misunderstood and notoriously difficult to manage hereditary degenerative neurological condition, thereby allowing the IJB to vote again on the basis of what it sees as credible and accurate information.

Supporters (59)

Source: the Scottish Parliament motions and amendments record.