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Motion · S4M-15401 · 21 Jan 2016

DEBRA, Raising Awareness of Epidermolysis Bullosa

Lodged by Patricia Ferguson Standard Motion 21 supporters

The motion

That the Parliament recognises the work of the charity, DEBRA, in raising awareness of epidermolysis bullosa (EB), providing support to those with the condition and their families and funding research; understands that EB is a group of currently incurable, painful, genetic skin-blistering disorders that cause the skin to blister and tear at the slightest touch; further understands that, in its most severe forms, EB can be fatal; believes that the blistering and scarring leaves people with the condition susceptible to internal and external infections and to skin cancer; recognises the efforts of DEBRA to raise money for research and support, and hopes that the pioneering research programmes that it funds continue to improve understanding of EB, find effective treatments and, ultimately, lead to a cure.

Supporters (21)

Source: the Scottish Parliament motions and amendments record.