Motion · S4M-04354 · 2 Oct 2012
Edwards Syndrome and Support for Babies with Palliative Care Needs
The motion
That the Parliament considers that there is a need to support families in Scotland affected by Edwards syndrome; notes the establishment in Aberdeen of the Caoimhe's Trust for Edwards Syndrome; understands that the majority of babies with the condition die before birth and those who are born are expected to survive for only a matter of weeks; believes that in those families where a child is born with Edwards syndrome there is a need for specific support and care; recognises the importance of early diagnosis of Edwards syndrome to inform parents as soon as possible; believes that there is a need for bereavement services for families who lose children because of it, and recognises the benefits of a framework for care in Scotland that meets the needs of babies requiring palliative care and supports their families and a care pathway approach to delivering care and support to these children and their families from diagnosis to end of life and bereavement.
Supporters (23)
- John Finnie 3 Oct 2012
- Jamie Hepburn Scottish National Party 3 Oct 2012
- Jim Hume 3 Oct 2012
- Alison Johnstone 3 Oct 2012
- Nanette Milne 3 Oct 2012
- Dr Richard Simpson 3 Oct 2012
- Jackie Baillie Scottish Labour 4 Oct 2012
- Claudia Beamish 4 Oct 2012
- Patricia Ferguson 4 Oct 2012
- Hugh Henry 4 Oct 2012
- Mike MacKenzie 4 Oct 2012
- John Mason 4 Oct 2012
- Margaret McDougall 4 Oct 2012
- Dennis Robertson 4 Oct 2012
- Drew Smith 4 Oct 2012
- Mark McDonald 5 Oct 2012
- Dave Thompson 5 Oct 2012
- Maureen Watt 5 Oct 2012
- Rhoda Grant 9 Oct 2012
- Gil Paterson 10 Oct 2012
- Elaine Murray 17 Oct 2012
- Jackson Carlaw 25 Oct 2012
- Sarah Boyack 13 Dec 2012
Source: the Scottish Parliament motions and amendments record.