Motion · S4M-06712 · 22 May 2013
Access to Rare Disease Drugs
The motion
That the Parliament commends the work of the Muscular Dystrophy Campaign and the Cross Party Group on Muscular Dystrophy on raising the issue of speeding up access to high-cost, low-volume drugs for rare and very rare conditions such as muscular dystrophy and other neuromuscular conditions; understands that potential treatments for Duchenne muscular dystrophy are on the horizon; notes reports of patients in North East Scotland with Pompe disease experiencing difficulty in accessing treatment; notes the establishment of the Rare Conditions Medicines Fund and what it considers the important role of the Scottish Medicines Consortium and NHS Scotland in the regulatory and reimbursement process, and notes calls for patients with rare conditions to be able to access vital treatments, regardless of cost.
Supporters (17)
- Jackie Baillie Scottish Labour 22 May 2013
- Jackson Carlaw 22 May 2013
- Murdo Fraser Scottish Conservative and Unionist Party 22 May 2013
- John Lamont 22 May 2013
- Jamie McGrigor 22 May 2013
- Liz Smith 22 May 2013
- Patricia Ferguson 23 May 2013
- Kenneth Gibson No Party Affiliation 23 May 2013
- Richard Lyle 23 May 2013
- Margaret McDougall 23 May 2013
- Anne McTaggart 23 May 2013
- Mary Scanlon 23 May 2013
- Margaret Mitchell 28 May 2013
- Gil Paterson 28 May 2013
- Annabelle Ewing 29 May 2013
- Sandra White 30 May 2013
- Annabel Goldie 5 Jun 2013
Source: the Scottish Parliament motions and amendments record.